Steve, a software engineer, was diagnosed
Eye-gaze devices allow some people with limited speech or hand movements to communicate, use environmental controls, compose music, and paint. That includes patients with ALS – up to 80% have communication difficulties. Other conditions that can benefit from these devices include cerebral palsy, strokes, multiple sclerosis and spinal cord injuries. It’s a far cry from Elle editor-in-chief Jean-Dominique Bauby, locked-in by a stroke in 1995, painstakingly blinking through letters on an alphabet board. His memoir, written at one word every two minutes, later became a film, The Diving Bell and the Butterfly. Although some still use low-tech options (not everyone can meet the physical or cognitive requirements for eye-gaze systems; occasionally, locked-in patients can blink but cannot move their eyes), speech-to-text and text-to-speech functionality on smartphones and tablets has revolutionised communication.

